Wednesday, July 28, 2010
Sunday, July 25, 2010
Uncle Visa says we can go :-)
Our friends and family raised a considerable amount of money for China....so much so, there was enough left over to pay for part of the treatment in Bulgaria! We are blessed.
So, with that and my new relative, Visa Gold, we're starting to pack!
for those wanting this info, here it is:
Flight leaves tomorrow at 18:25 (6:25) from the Charlottetown Airport. We are flying AirCanada with arrival in Montreal at 18:58 (6:58). We have exactly one hour to make our next flight however we have requested a wheechair and attendant at each gate. Flight AC874 departs Montreal at 19:55( 7:55) with arrival in Frankfurt, Germany at 08:55.....not sure on the time change yet but it is suppose to be an 8 hour flight....so roughly (4:00 am PEI time)....and as a treat from a wonderful friend, this portion of the journey, is in FIRST CLASS!! (pics to follow!) Our flight to Sofia departs at 10:05 arriving at 13:20. Suffice it to say, the old man will be tired.
So, with that and my new relative, Visa Gold, we're starting to pack!
for those wanting this info, here it is:
Flight leaves tomorrow at 18:25 (6:25) from the Charlottetown Airport. We are flying AirCanada with arrival in Montreal at 18:58 (6:58). We have exactly one hour to make our next flight however we have requested a wheechair and attendant at each gate. Flight AC874 departs Montreal at 19:55( 7:55) with arrival in Frankfurt, Germany at 08:55.....not sure on the time change yet but it is suppose to be an 8 hour flight....so roughly (4:00 am PEI time)....and as a treat from a wonderful friend, this portion of the journey, is in FIRST CLASS!! (pics to follow!) Our flight to Sofia departs at 10:05 arriving at 13:20. Suffice it to say, the old man will be tired.
........And so begins another adventure!
This time, we're not heading west young man, we're heading further east! Bulgaria. Sofia, to be exact. We're heading to Europe, Baby!......Sounds exciting, huh? Well, it ain't what ya think but it's all good. Kevin is scheduled for testing and **fingers crossed**, hopefully, treatment for CCSVI, at a wonderful hospital there. Not sure if he'll feel much like "touring" even if there is time. Time will tell.
CCSVI. What is it? "Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood cells and fluids into the delicate tissue of the brain and spine. Blood that stays in the brain too long, creates “slowed perfusion”...a delay in deoxyginated blood leaving the head. This can cause a lack of oxygen (hypoxia) in the brain. Plasma and iron from blood deposited in the brain tissue are also very damaging. " ( this if taken from http://csvi-ms.net/en)
I have been working on getting Kevin tested for CCSVI since last November. Ironically, it was before the floodgates were opened by W5. I wrote to Dr. Zamboni, including every address I could find at his hospital, to no avail. Kevin was added to the list of possible patients for the Buffalo trial in November....no further contact. Dr. MacDonald in Ontario was no longer taking patients. Nothing in the US either.....Jeez.
While reading a blog entry on this subject, I came across someone scheduled for Bulgaria and got Kevin added to the waiting list. It was just days before they sent the forms and then 24 hours later, we had a date of July 29th. We can see that day now :-) . We did go see our family doc who tried to get us testing done in Halifax, NS and Montreal but they were no longer able to do the tests on MS patients. Figures. Next option, please.
Bulgaria.
We didn't enter into this decision lightly. In late 2008, Kevin and I spent 5 weeks in China for umbilical cord stem cell treatment. It was an incredible experience! The change in Kevin was staggering. To see him mobile, not napping, brought back earlier memories of better times. The effects of that treatment lasted a year. Many see Kevin today and comment how China didn't work. China worked. Stem cells are the way to go WHEN the MS has been stopped. We didn't go there looking for a cure, we went to get Kevin some quality of life back.....and we did. We were just hoping for more time. This past year has been very difficult for him. He is pretty much confined to a wheelchair and horizontal when not. The boys at Rod's garage have kept him going but the last couple of weeks, with the heat, have seen him in bed most of the time. 'nuff said.
Fingers and toes crossed that he'll soon be back driving his '55 chevy.
We have been on the waiting list since early May. Everything I have read or heard about this treatment and the care at this hospital, has been extraordinary. Can't wait.
CCSVI. What is it? "Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood cells and fluids into the delicate tissue of the brain and spine. Blood that stays in the brain too long, creates “slowed perfusion”...a delay in deoxyginated blood leaving the head. This can cause a lack of oxygen (hypoxia) in the brain. Plasma and iron from blood deposited in the brain tissue are also very damaging. " ( this if taken from http://csvi-ms.net/en)
I have been working on getting Kevin tested for CCSVI since last November. Ironically, it was before the floodgates were opened by W5. I wrote to Dr. Zamboni, including every address I could find at his hospital, to no avail. Kevin was added to the list of possible patients for the Buffalo trial in November....no further contact. Dr. MacDonald in Ontario was no longer taking patients. Nothing in the US either.....Jeez.
While reading a blog entry on this subject, I came across someone scheduled for Bulgaria and got Kevin added to the waiting list. It was just days before they sent the forms and then 24 hours later, we had a date of July 29th. We can see that day now :-) . We did go see our family doc who tried to get us testing done in Halifax, NS and Montreal but they were no longer able to do the tests on MS patients. Figures. Next option, please.
Bulgaria.
We didn't enter into this decision lightly. In late 2008, Kevin and I spent 5 weeks in China for umbilical cord stem cell treatment. It was an incredible experience! The change in Kevin was staggering. To see him mobile, not napping, brought back earlier memories of better times. The effects of that treatment lasted a year. Many see Kevin today and comment how China didn't work. China worked. Stem cells are the way to go WHEN the MS has been stopped. We didn't go there looking for a cure, we went to get Kevin some quality of life back.....and we did. We were just hoping for more time. This past year has been very difficult for him. He is pretty much confined to a wheelchair and horizontal when not. The boys at Rod's garage have kept him going but the last couple of weeks, with the heat, have seen him in bed most of the time. 'nuff said.
Fingers and toes crossed that he'll soon be back driving his '55 chevy.
We have been on the waiting list since early May. Everything I have read or heard about this treatment and the care at this hospital, has been extraordinary. Can't wait.
Subscribe to:
Comments (Atom)